‘I Am: Celine’: Celine Dion opens up in new documentary
ByJessica Goodman, Cox Media Group National Content Desk
“My Heart Will Go On” singer Celine Dion shares details about her stiff person syndrome diagnosis in a new documentary that shows her career and the impacts of the incurable disorder.
“I am working hard every day but I have to admit, it’s been a struggle. I miss it so much. The people. I miss them,” Dion said in the new trailer of her documentary, “I Am: Celine,” according to CNN.
“I wasn’t ready to say anything before,” Dion said in the trailer, according to People magazine, “but I’m ready now.”
In the trailer, Dion shared how much her love for singing and performing has kept her going. Dion has been living with a rare neurological disorder called stiff person syndrome.
It shares behind-the-scenes footage from Dion’s career and reveals details about Dion’s diagnosis and how it may affect her ability to walk and sing, Variety reported.
“If I can’t run, I’ll walk. If I can’t walk, I’ll crawl,” she added, according to CNN. “And I won’t stop. I won’t stop.”
“I Am: Celine” will be streamed on Prime Video on June 25, according to “Today.”
“This is the only place I have that I could suffer, cry, go crazy, be happy, sing, miss a beat — and right now, to be vulnerable,” Dion told Vogue, according to “Today.”
The National Institute of Neurological Disorders and Stroke says that Stiff-Person Syndrome is “a progressive disorder that affects the brain and the spinal cord,” according to Variety. Symptoms include rigidity or spasms. This can affect the entire body, muscle enlargement and could make walking or moving difficult. There is reportedly no cure.
Dion revealed she was diagnosed with the disorder in December 2022, according to The Hollywood Reporter.
Dion is a five-time Grammy Award-winning singer, according to People.
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